Over time (6-8 weeks), this may cause the growth of new arteries in the brain and provide more blood flow. About Us. As the internal carotid artery's branches constrict over time due to the presence of moyamoya, patients will often suffer a stroke or transient ischemic attack. $10/month. YAY! My work was very understandable. These vessels, which provide oxygen-rich blood to the brain, narrow over time. Blog:  Multimedia File Viewing and Clickable Links are available for Registered Members only!! During his 20+ years as a neurosurgeon, Dr. Michael G. Muhonen has helped more than 100 patients and their families with Moyamoya brain disease through diagnosis, surgery and recovery. Over the next two years with no additional strokes or TIAs, she finished college, and graduated Plymouth State University cum laude in June of 2016. Take a look at our blog for an idea of the day-to-day recovery - it was NOT as scary as I thought it was going be! Patients might experience: ... After surgery, patients spend recovery time in our neurocritical care unit and begin seeing our … Talk to a doctor now. I was diagnosed with MM in Dec. 08  and will be having surgery in two weeks. Aspirin may help increase blood flow to the brain and is typically recommended. Moyamoya most commonly affects children and young adults and there is currently no known medical cure, but surgery to increase blood flow to the brain is an effective option. These networks, visualized by a particular test called an a… Surgery is the preferred treatment for the disease. Talk to a doctor now. At that time, motor and language recovery were rapid and complete. Get the free app for Doctors. Perioperative clinical data were collected and follow-up was conducted via telephone interviews. A 45-year-old member asked: is there a cure for moyamoya? Just have him tell his work that if he needs to go home let him or if he needs a rest let him. His recovering as been considered exceptional and his pain level has been less than the pain he experienced after his shoulder surgery (surfing accident). my husband was diagnosed on Nov 24th. Recovery time depends on the severity of the surgery, but most families can expect to spend about three days in the hospital. The mortality rate in adults (around 10%) is higher than the mortality rate for children (around 4.3%). The area between my right eye and about an inch or two down my right cheek also has a "tight" feeling. Health insurance may cover the expenses, but in a number of cases patients are forced to pay by themselves. Surgical vs. Medical Management • Up to 2/3 of patients with moyamoya will have Several surgical treatments for moyamoya are effective at bypassing narrowed arteries and creating a new blood supply for the affected areas of the brain. You need to, Hi Alia, I am so relieved to read your post. Moyamoya disease is an inherited (genetic) progressive cerebrovascular disorder caused by arteries that are blocked at the base of the brain. • That same year, a paper reported that the rate of disease progression with medical management alone is high. I have really good feelings about the surgery and I think that's important. lillyandjohn:joshand mom:i'' can only relate my experience.I had my stroke nov24th2009.thats when I recieved my MM diagnosis,I went thru rehab for my stoke.I then had my surgery Feb 2 2010.One night in ICU for observation and one day of mri's and stuff to make sure everything was working right.I was discharged Feb 4th 2010.The surgery was pretty painless.John and josh are gonna do fine and be up and around in no time.The Doctors "got this"down to an art.I know it sounds scarry but stay strong and know were all praying for you guys. The staging system for moyamoya disease first described by Suzuki and Takaku in their seminal 1969 article 9) is still in use today. 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